Being born with cystic fibrosis (CF) — a progressive, genetic lung disease — I have had countless health care encounters throughout my life, spending time in the hospital being treated for lung infections through adolescence and into adulthood. From these experiences, I learned the power that lies in self-advocating for my health in the clinical…

After completing the EUPATI Fellowship, I returned to my work with a renewed sense of strength, clarity, and purpose. The programme gave me tools, but more than that—it reminded me why I do this work. I felt a deep desire to amplify the voices of patients living with atopic dermatitis and to bring this understanding…

My journey with patient advocacy began long before I joined the EUPATI Patient Expert Training Programme. It was shaped by lived experience — supporting my spouse through Amyotrophic lateral sclerosis  (ALS) — and later strengthened through years of professional engagement in European-level dialogue, policy, and education.  EUPATI offered the missing bridge: structured knowledge that connects…