Our Initiatives
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UCAN Ireland: Patients Leading Change
I co-founded UCAN Ireland, an all Island cancer patient organisation established to unite patient voices and address systemic issues in cancer care in Ireland. UCAN was formed by powerful patient advocates from different cancers coming together, recognising the need for a single cancer patient organisation to ensure the patient voice cannot be ignored. Since its…
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Raposinha em Movimento – An Initiative Led by Lived Experience
I joined the EUPATI Fellowship following the recommendation of Neurofibromatosis Patient United (NFPU), the European umbrella organization for neurofibromatosis associations. They believed this program would equip me with essential tools to grow as a patient advocate, and they supported my participation through a funded fellowship. What motivated me most was the opportunity to truly understand…
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Strengthening Patient Partnership in Swiss Healthcare Decision-Making
I am the Patient Partner and the study coordinator of this 2 year mandate from the Swiss Federal Office of Public Health to strengthen patient partnership into the decision making processes of the Swiss Healthcare system. We conducted an environmental scan with interviews from experts in international contexts, and this first phase has been published…