Author: Aspasia Karampela
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From Lived Experience to Structured Patient Involvement: My EUPATI Journey
My journey with patient advocacy began long before I joined the EUPATI Patient Expert Training Programme. It was shaped by lived experience — supporting my spouse through Amyotrophic lateral sclerosis (ALS) — and later strengthened through years of professional engagement in European-level dialogue, policy, and education. EUPATI offered the missing bridge: structured knowledge that connects…