Since completing my EUPATI training, I have continued to expand my role as a patient advocate and as the founder of RENESANSA – Women Association Fighting Breast Cancer in Kosovo. I have initiated and contributed to several national and regional projects aimed at strengthening patient involvement, improving early detection, and ensuring better support services for cancer patients.
Key initiatives include:
Race for the Cure Kosovo – I lead the national implementation of this awareness and solidarity campaign in partnership with Think Pink Europe, engaging thousands of participants annually and increasing visibility for breast cancer in Kosovo.
National Psychosocial Support Programme (2025–2027) – I developed a comprehensive project submitted to the Ministry of Health to ensure accessible psychological support for breast cancer patients across Kosovo, including therapy services and professional training.
“Frymëmarrje për Jetë” Lung Cancer Awareness Initiative – I launched Kosovo’s first NGO-led lung cancer awareness programme focusing on education, early detection, and partnerships with international stakeholders.
WBF-funded Regional Patient Survey (Kosovo, Albania, North Macedonia) – I led the Kosovo component of a 150+ participant survey on breast cancer services and systemic challenges, contributing to evidence-based advocacy at regional level.
National Breast & Cervical Cancer Education Campaign – I designed and implemented nationwide early detection activities, including community workshops, printed materials, and collaborations with municipalities.
Translation & Adaptation of Educational Materials – I translated major cancer education resources (Know Your Lemons®, clinical trials modules, HTA and health economics presentations, patient surveys) into Albanian, Bosnian, and Turkish, enabling wider accessibility for patients.
International Collaboration – I actively contribute within European advocacy networks (CPE, ABC Global Alliance, ESMO, RRI, EUCAPA, EUPATI) by sharing insights from Kosovo, participating in roundtables, and supporting cross-country initiatives.
Across all these projects, my focus remains on empowering patients, strengthening health literacy, promoting early detection, and amplifying the voice of patients in decision-making.
In the words of EUPATI Fellow Violeta Pirana – Cohort 6