Our Initiatives
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Removing Structural Obstacles to Inclusive Public and Patient Involvement (PPI)
The rules of the social welfare schemes in Ireland excluded people who had received Invalidity Pension from engaging in Public and Patient Involvement (PPI) activities. It excluded any paid or voluntary work, unless the recipient received permission from the Department of Social Protection. I receive this payment, and the Department permitted me to speak for 10 minutes at an…
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Underserved Communities in Healthcare: A Not Just Patients Series
Not Just Patients is a global podcast that aims to break barriers to meaningful patient involvement in healthcare. Hosted by Caitlin Rich and Clarinda Cerejo—both EUPATI Fellows and patients living with rare diseases—the podcast brings together a range of healthcare stakeholders to examine how healthcare can become more inclusive, collaborative, and effective. Over the past…
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Strengthening Patient Voices in Cancer Care
Since completing my EUPATI training, I have continued to expand my role as a patient advocate and as the founder of RENESANSA – Women Association Fighting Breast Cancer in Kosovo. I have initiated and contributed to several national and regional projects aimed at strengthening patient involvement, improving early detection, and ensuring better support services for cancer patients. …