The fact of being able to count on a larger number of patients with better knowledge and comprehension of clinical trials principles and issues, can only benefit clinical research.
When patients better understand how good quality clinical trials are performed and they can have a role in their design and conduct, serving to increase recruitment to clinical trials in Switzerland and Europe-wide. EUPATI materials can serve as the basis for training courses aimed at specific patient groups and contribute to the advancement of citizen science in general.
The processes of patient involvement in industry medicines research and development have evolved, but the evolution of frameworks, mechanisms, metrics and processes happens individually without much alignment and sharing.
The involvement and feedback of multiple stakeholders is essential in developing meaningful communications initiatives. Inspired by patient insights, this has been EUPATI’s approach and has resulted in impactful tools that have been developed by patients for patients.
Examining health system decision-making and HTA: Who makes decisions, how, and why?
In this video, three patient advocates discuss the merits of public involvement in HTA.