A short documentary that follows David Haerry, Dimitrios Athanasiou, and Jan Geissler and how as patients they have a voice in medicines research and development.
In this video, patient advocates discuss how regulators can strengthen the patient voice in HTA.
The stories of patients, families, partners, friends, scientists and health care professionals are quite compelling – and underline that we have a long way to go toward more systematic patient involvement across our health ecosystem. That can only be achieved through appropriate collaboration, commitment, and connection.
The power of the patient voice is phenomenal, and inspires, motivates, informs, challenges and advises us during our awareness seminars. It may sound simple – share your experience and raise awareness; however the patient voice goes far beyond story-telling. Many patients reveal the challenges they have faced getting a proper diagnosis, what taking medicines is like, how it is to be a clinical trial participant, the hurdles of getting access to medicines, the side effects of treatment, remembering to a take their medicine(s), their unmet needs and what they’d like to see from future medicines and research.