A French patient association (La Ligue contre le cancer – http://www.ligue-cancer.net/ ), developed a collaboration in oncology with the Sanofi-French Clinical Study Unit (CSU) to involve patients in the review of informed consent forms and a survey about patient participation in clinical studies.
Involvement Case Report
Expert melanoma nurses and advocacy group experts held a Melanoma board meeting to explore perceptions about novel treatments and scientific developments in the management of melanoma.
A Patients Involved case report on an R&D collaboration between the European AIDS Treatment Group, European Liver Patients Association, Treatment Action Group, and Janssen R&D.
A patients involved case report on the Duchenne Parent Project collaborating with academia and industry to find a cure/treatment for Duchenne Muscular Dystrophy.
A collaboration between Bristol-Myers Squibb (BMS) with FUNDHEPA (patient organisation) to give more patients the opportunity to receive an innovative treatment for Hepatitis C through the participation in a clinical trial.
An example of public-private partnership (DevelopAKUre) from diverse international groups in industry (Sobi), patient organisations (AKU Society and ALCAP), hospitals (Royal Liverpool, Hospital Necker, and National Institute of Rheumatic Diseases), Academia (Universities of Liverpool and Siena, Institute of Molecular Physiology and Genetics) and Small and Medium Enterprises –SME– (Nordic Bioscience, PSR and Cudos) to cure alkaptonuria (AKU).