Meet the Swiss EUPATI National Platform
The EUPATI National Platform (ENP) in Switzerland brings together patient, academic and industry representatives who want to work in partnership to promote patient education and enhance patient involvement in the Swiss medicines research and development (R&D) process.
The National Platform is led by an Executive Committee – or a National Team – which shares information among members and grows the discussion around national patient involvement issues and opportunities. The Team meets regularly and provides ongoing management and administrative support to the Platform.
- Hansruedi Voelkle - Positivrat Schweiz
- Karin Holm - PACRT (Patient Advocates for Cancer Research and Treatment)
- Geraldine Canny - Endo-Help, Association Suisse de l'endométriose
- USB (University Hospital Basel)
- Annette Magnin - SCTO (Swiss Clinical Trial Organisation)
- Caecilia Schmid - SCTO (Swiss Clinical Trial Organisation)
- Emilie Jaquiery - Novartis Pharma Schweiz
- Marco Petrimpol - Novartis Pharma Schweiz
Other national partners
- Cordula Langraf - Swissmedic (Swiss Agency for Therapeutic Products)
EUPATI Switzerland Ambassadors
- Liz Isler - Forum Lungenkrebs Schweiz
- Nicole Scobie - Zoe4life
EUPATI Switzerland Expert patient trainees
- Peter Lack - Childhood Cancer Switzerland
- Rosemarie Pfau - ho/noho - Schweizerische Patientenorganisation fuer Lymphombetroffene und Angehoerige)
Our work to date
In 2013, EUPATI created the National Team in Switzerland with the support of representatives of Positivrat Schweiz, the Swiss Clinical Trial Organisation (SCTO) and the University Hospital Basel (USB). In 2014, the Team was joined by Patient Advocates for Cancer Research and Treatment (PACRT) and Association Suisse de Soutien Contre l’Endométriose (ASSCE), as well as industry representatives from Novartis. Since shortly after its creation, the Team has worked closely with Swissmedic, the Swiss Agency for Therapeutic Products.
To introduce other national partners to EUPATI, on 11 December 2014, around 50 patient representatives, academic researchers and pharmaceutical professionals came together in Bern to discuss the current situation for patient involvement in the Swiss medicines research and development process. On 23 March 2015, a similar event was held in Lausanne for national partners in the French-speaking region.
The Team is planning to launch its EUPATI National Platform on February 3, 2016. As this Platform will be a broad-based network of national health partners interested in patient education and patient involvement in medicines R&D, the Team is keen to hear from anyone interested. Please contact them at firstname.lastname@example.org.
Our future plans
Throughout 2016, we invite all national partners with an interest in patient education and patient involvement to join the EUPATI National Platform. We hope that patient, academic and industry representatives can work with government officials, regulatory bodies, health technology assessment agencies, associations of doctors and nurses, medical journalists, and many more, to better include patients across the medicines R&D process.
To prepare the way for greater patient involvement, the EUPATI National Platform provides patients with access to important information and education, including the new EUPATI Patient Advocate Toolbox and Online Library which can be adapted further to meet individual training and learning needs. The National Platform also engages with trainees from the 14-month EUPATI Patient Expert Course to see how they might move their knowledge from theory to practice and to explore how the course material might be shared with other patient communities.
Join the Swiss EUPATI National Platform
To connect with the Swiss National Platform, please use the contact form below or email the Team at CHemail@example.com.
By getting in touch, you can be involved in setting the Platform’s strategy around patient involvement, you can be kept informed of upcoming patient education and advocacy initiatives (conferences, workshops, trainings), and you can be linked up with like-minded national health partners.
Don’t leave without saying hello!