Meet the Luxembourgish EUPATI National Platform
The EUPATI National Platform (ENP) in Luxembourg brings together patient, academic and industry representatives who want to work in partnership to promote patient education and enhance patient involvement in the Luxembourgish medicines research and development (R&D) process.
The National Platform is led by an Executive Committee – or a National Team – which shares information among members and grows the discussion around national patient involvement issues and opportunities. The Team meets regularly and provides ongoing management and administrative support to the Platform.
- Pascal Niemeyer – European Gaucher Alliance (EGA)
- Serge Haag – CHEM hospital (Centre Hospitaler Emile Mayrisch) Luxembourg
- Joseph Even – Luxemburgish association for people living with a rare disease (ALAN)
- Manon Gantenbein – Luxembourg Institute of Health L.I.H.
- Anna Chioti – Luxembourg Institute of Health L.I.H.
- Tania Zamboni – Luxembourg Institute of Health L.I.H.
- Hendrik Kühne – Luxembourgish Pharmaceutical Association (Association Pharmaceutique Luxembourgeoise)
Other national partners
- Malika Pailhès – Luxembourg National Research Ethics Committee
Our work to date
In 2014, EUPATI created the National Team in Luxembourg with the support of representatives of the Association Luxembourgeoise d’aide pour les personnes atteintes de maladies neuromusculaires et de maladies rares (ALAN), Luxembourg Institute of Health (LiH), the Comité National d’Ethique de Recherche (CNER), CHEM hospital (Centre Hospitaler Emile Mayrisch), and the Association Pharmaceutique Luxembourgeoise. On 10 December 2014, the Team hosted a press conference to introduce national health partners to EUPATI and to open the discussion on patient education and patient involvement in medicines research and development in Luxembourg. The Team hosted a second event on 17 March 2015 to raise awareness of the importance of patient involvement and the contributions which patients can make across the R&D process.
Our future plans
Throughout 2016, we invite all national partners with an interest in patient education and patient involvement to join the EUPATI National Platform. We hope that patient, academic and industry representatives can work with government officials, regulatory bodies, health technology assessment agencies, associations of doctors and nurses, medical journalists, and many more, to better include patients across the medicines R&D process.
To prepare the way for greater patient involvement, the EUPATI National Platform provides patients with access to important information and education, including the new EUPATI Patient Advocate Toolbox and Online Library which can be adapted further to meet individual training and learning needs. The National Platform also engages with trainees from the 14-month EUPATI Patient Expert Course to see how they might move their knowledge from theory to practice and to explore how the course material might be shared with other patient communities.
Join the Luxembourgish EUPATI National Platform
To connect with the Luxembourgish National Platform, please use the contact form below or email the Team at firstname.lastname@example.org.
By getting in touch, you can be involved in setting the Platform’s strategy around patient involvement, you can be kept informed of upcoming patient education and advocacy initiatives (conferences, workshops, trainings), and you can be linked up with like-minded national health partners.
Don’t leave without saying hello!