Meet the Italian EUPATI National Platform
The EUPATI National Platform (ENP) in Italy brings together patient, academic and industry representatives who want to work in partnership to promote patient education and enhance patient involvement in the Italian medicines research and development (R&D) process.
The National Platform is led by an Executive Committee – or a National Team – which shares information among members and grows the discussion around national patient involvement issues and opportunities. The Team meets regularly and provides ongoing management and administrative support to the Platform.
- Filippo Buccella, Chair, Parent Project Onlus
- Silvia Starita, Parent Project Onlus
- Linda Henderson, Atta Lazio Onlus
- Dominique Van Doorne, Associazione Medici Endocrinologi (AME)
- Moreno Busolin
- Francesca Ceradini
Other national partners
- Silvano Berioli, EUPATI Mentor for Italy
Our work to date
In 2013, EUPATI created the National Team in Italy with the support of representatives of Parent Project Duchenne, Associazione dei malati di Tumore della Tiroide ed Associati, Associazione Medici Endocrinologi (AME) and an independent industry consultant. In July 2014, the Team signed a memorandum of understanding with the Italian Medicines Agency (AIFA) to work towards the creation of a EUPATI Patient Expert Training Course in Italian. In October 2014, the Team formed the Executive Committee of the future Italian EUPATI National Platform, securing the support of AIFA, the Ministero Della Salute, Associazione Persone con Malattie Reumatiche (APMAR), ISPOR Italy Chapter Rome, Clinical Trials Center (CTC UCSC), Istituto Mario Negri, the Istituto Superiore della Sanità. FarmIndustria, Federazione Ordine Farmacisti Italiani (FOFI), FAVO (talian Federation of oncological voluntary associations) and FederAnziani. After several more months of outreach to national health partners, on 10 April 2015, over 200 patients, academics, industry and health policy and decision-makers came together for the launch of the Italian EUPATI National Platform in Rome. As a next step, the Italian National Platform will host a two-day workshop in early 2016 to share national patient involvement best practices and abstract papers are currently being welcomed.
Our future plans
Throughout 2016, we invite all national partners with an interest in patient education and patient involvement to join the EUPATI National Platform. We hope that patient, academic and industry representatives can work with government officials, regulatory bodies, health technology assessment agencies, associations of doctors and nurses, medical journalists, and many more, to better include patients across the medicines R&D process.
To prepare the way for greater patient involvement, the EUPATI National Platform provides patients with access to important information and education, including the new EUPATI Patient Advocate Toolbox and Online Library which can be adapted further to meet individual training and learning needs. The National Platform also engages with trainees from the 14-month EUPATI Patient Expert Course to see how they might move their knowledge from theory to practice and to explore how the course material might be shared with other patient communities.
Join the Italian EUPATI National Platform
To connect with the Italian National Platform, please use the contact form below, email the Team at firstname.lastname@example.org or visit our website at www.accademiadeipazienti.org.
By getting in touch, you can be involved in setting the Platform’s strategy around patient involvement, you can be kept informed of upcoming patient education and advocacy initiatives (conferences, workshops, trainings), and you can be linked up with like-minded national health partners.
Don’t leave without saying hello!