On 4 October, IPPOSI celebrated its 10th Anniversary in Dublin, Ireland. EUPATI Ireland Fellow Rachel Lynch gave the keynote address and EUPATI Project Coordinator and European Patients’ Forum Secretary General Nicola Bedlington joined a panel to discuss the future of healthcare in Ireland and in Europe in 2026. Details of their discussion and the event can be found here. On the same day, an article in the national newspaper – the Irish Times – shared Rachel’s patient journey and her experience since joining the EUPATI course. Later in the month, on 26 October, Irish EUPATI Fellows Noirin O’Neill and Sharon Thompson co-hosted an #Irishmed tweet chat on ‘The Expert Patient’ which resulted in almost 1,000 tweets across the hour. The questions posed included ‘what impact can expert patients have?’ ‘what challenges do they face?’ And, ‘how can they interact with healthcare professionals?’
On 06 October, EUPATI Spain hosted a workshop with Fundacion Quaes in which approximately 50 patient representatives learnt more about the vision of EUPATI Spain, about the importance of patient involvement in biomedical research, and about how patients can use the EUPATI Toolbox to increase their knowledge of medicines development.
On 24 October EUPATI Spain met with the Spanish Patients Forum to formalise their future partnership and the proposal to integrate EUPATI Spain into the governance structure of the Forum as an autonomous Sub-Committee. On 26 October, EUPATI Spain agreed a joint programme of activities for 2017 with the Spanish regulator (AEMPS) which will see the funding of a series of approximately six trainings on topics relating to medicines research and development in 2017 and a commitment to continue the program for at least three years. On 3 November, Daniel Gil presented EUPATI to the Spanish MS Society, and on 8 November, Rob Camp explored EUPATI’s ideas on patient engagement in clinical research at the Fundación MÁS QUE IDEAS event, to mark the occasion of Clinical Research Week (the Spanish version of the Toolbox is available here).
On 7 October, EUPATI Portugal presented at various sessions during the iMed ULisboa Open Day, and also at the APIFARMA Annual Conference on 09 November.
Twice in October, EUPATI Slovakia hosted patient education events using tools from the EUPATI Toolbox for members of national rheumatism and multiple sclerosis organisations.
On 26 October, EUPATI Luxembourg presented EUPATI and the Toolbox to patients and researchers attending the 2016 Medical Research Day organised by the Luxembourg Institute for Health and other national partners. Several patient organisations have since expressed interest in joining the existing members of EUPATI Luxembourg, and together the team are planning to host a number of training events next year using EUPATI starter kits which identify useful training tools in 9 key areas.
Also in October, EUPATI UK provide 500 participants at the NHS Research Scotland Annual Conference with an opportunity to view a live demonstration of the EUPATI Toolbox (the English version of the Toolbox is available here)
In other news, EUPATI Austria, Germany and Poland all held National Platform meetings during this period. EUPATI Denmark helped Swedish partners explore the possibility of establishing a National Platform in Sweden in 2017. EUPATI Romania, and supporters of EUPATI in the Netherlands, continued to translate tools from the EUPATI Toolbox into their local languages in preparation for the launch of a complete Toolbox in January 2017.