This blog entry was originally written for the Protect ERNs website. Please sign up here to support the campaign. EUPATI Alumna Maria Piggin, and Sophie Wintrich report: PRESERVATION OF THE UK IN ERNs – WHAT COLLABORATION MEANS FOR PATIENTS AFFECTED BY RARE BLOOD DISORDERS Maria Piggin, Chair of PNH Support, and Sophie Wintrich, CEO of MDS UK Maria Piggin…Read more
ISPOR is recognised globally as the leading educational and scientific organisation for health economics and outcomes research (HEOR) and its use in healthcare decisions. The ISPOR Europe 2018 conference took place in Barcelona, Spain from 10-14 November. It featured three thought-provoking plenary sessions and more than 2500 presentations in the form of workshops, issue panels,…Read more
Candy Heberlein reports from Switzerland, a country with a very active national Eupati platform.: The Swiss Platform has been one of the most active and agile in the EUPATI network. Candy Heberlein was involved in its early meetings. Also, the strong tradition of advocacy in haematological malignancies has created a perfect environment also for Candy…Read more
EUPATI alumni Joan Jordan, Begonya Nafria, Dominique Hamerlijnck and Victoria Fonsou report from the first PARADIGM meeting The word PARADIGM has taken on a whole new meaning in the EUPATI community! The acronym stands for “Patients Active in Research and Dialogues for an Improved Generation of Medicines”. The aim of the PARADIGM project is to…Read more
The purpose of this tender is to invite applications to perform the final evaluation of the impact of the EUPATI Project.
The objective of this task is to gather evidence on the impact generated by the project against the objectives and key performance indicators set out in the description of work. This assignment will complement evidence and data collected internally by the project consortium.
It is our pleasure to invite you to our final EUPATI Conference on the 14th of December 2016 entitled “All Aboard to a Better Health Future” timed to coincide with this ceremony.
The EUPATI Toolbox is a fantastic new resource containing over 3000 pieces of content to help you learn more about the medicines research and development (R&D) process. Since its release in January 2016, tens of thousands of visitors from across Europe have been discovering, adapting and sharing tools to educate themselves and their patient communities. There are many different ways to use the EUPATI Toolbox, and we want to capture how different people in different countries are getting on.