The key assets of EUPATI – the website, the Toolbox, and the Expert Training Course – will be maintained and developed, continuing to educate and empower patients for a more active role as partner in all aspects of medicines research and development.
The EUPATI 2016 Conference, entitled “All Aboard to a Better Health Future”. Attracting more than 250 delegates, attendees heard from experts in the pharmaceutical industry, regulatory and academic fields of the growing influence of patients at all stages of medicine development.
The fact of being able to count on a larger number of patients with better knowledge and comprehension of clinical trials principles and issues, can only benefit clinical research.
How have you used the Patient Education Toolbox? Let us know, with photos, videos, adapted materials…
Patients are more and more in the drivers seat and we have news from all over Europe on how patients are working with other stakeholders to redraw the lines of what and how is patient engagement.
Since the launch, there has been an average of almost 23,000 page views per month. While this is the average, it has been growing month on month.
EUPATI’s vision can be connected back to rights for patients. The right to be informed, the right to be educated, the right to be involved, the right to be seen as an equal partner.
When patients better understand how good quality clinical trials are performed and they can have a role in their design and conduct, serving to increase recruitment to clinical trials in Switzerland and Europe-wide. EUPATI materials can serve as the basis for training courses aimed at specific patient groups and contribute to the advancement of citizen science in general.
I am one of this year’s students learning to translate medical-speak to meaningful, accessible and reliable information. This knowledge needs to be made accessible to everyone. Cue the Patient Advocate Toolbox!
National team activities on patient engagement in many European countries.