When patients better understand how good quality clinical trials are performed and they can have a role in their design and conduct, serving to increase recruitment to clinical trials in Switzerland and Europe-wide. EUPATI materials can serve as the basis for training courses aimed at specific patient groups and contribute to the advancement of citizen science in general.
Audio editing and recording software packages generally offer the ability to record and edit (like Audacity, etc), and export audio, and Audio Hosting like SoundCloud.
I am one of this year’s students learning to translate medical-speak to meaningful, accessible and reliable information. This knowledge needs to be made accessible to everyone. Cue the Patient Advocate Toolbox!
“Images” includes Basic photo editing (Microsoft Paint, Preview), more Advanced (Gimp, Pixlr, Paint.net and Pixelmator) and Vector image editing (Inkscape and iDraw).
The involvement and feedback of multiple stakeholders is essential in developing meaningful communications initiatives. Inspired by patient insights, this has been EUPATI’s approach and has resulted in impactful tools that have been developed by patients for patients.
Viewing videos (media players), screen recorders like QuickTime and Icecream, Video editors like Lightworks and Windows MovieMaker, Video conversion and compression like Miro, and Video hosting (YouTube, Vimeo, Wistia).
We need to be fast, efficient and professional even though resources may be limited. These new and start-up technology platforms for our work are usually either free of charge, or at least cheaper in an initial period: they are reliable and can satisfy our professional needs.
Learning and self-education are key. Knowing more about your disease and its medical and social background is not only empowering but also allows you to make a meaningful contribution to society.
EUPATI national activities in many of our local chapters – Ireland, UK, Austria, Italy
There are countless possibilities and opportunities for patients to become involved, even if it takes a lot of time and effort!