The EUPATI Network of National Platforms held its first general meeting in Berlin on 28 June 2017. Fifteen of the 18 national platforms were represented at the meeting, which was organised and hosted by IPPOSI, the patient organisation umbrella and EUPATI partner in Ireland.
In addition to presentations from platform representatives from Germany, Norway, Ireland, Spain and Romania, participants also debated in detail how the platforms can and should work together more across Europe. All platforms have different legal and organisational structures, meaning that cooperation and coordination may sometimes become more complex. The workshop held in the second part of the meeting showed that cooperation is most purposeful when it comes to educational and informational projects that empower patient communities to work together on the basis of objective and scientifically sound information.
ENP co-chairs Derrick Mitchell and Beatriz Silva-Lima highlighted the importance of spreading the good practices and lessons from the work of national platforms, with special regard to facilitating additional language versions, translations of the Toolbox, and the recruitment of patient organisations and their associations to educate patients and lay people about clinical trials and medicines development.