The 3rd International Annual Congress on Clinical Trials was held in Vienna, Austria on 4-5 April 2019. The event brought together contract research organisations, pharmaceutical companies, patients, and trial recruitment agencies to discuss the latest trends and developments in the field of initiating, conducting and managing clinical trials in Europe, with a particular emphasis on…Read more
Strong EUPATI Presence at Roadmap Initiative to Good Lay Summary Practices Meeting Having participated in a clinical trial in the past, I found it difficult to get access to the results in an understandable format. This is an issue for many patients who have either taken part in or would like to know the outcomes…Read more
This blog entry was originally written for the Protect ERNs website. Please sign up here to support the campaign. EUPATI Alumna Maria Piggin, and Sophie Wintrich report: PRESERVATION OF THE UK IN ERNs – WHAT COLLABORATION MEANS FOR PATIENTS AFFECTED BY RARE BLOOD DISORDERS Maria Piggin, Chair of PNH Support, and Sophie Wintrich, CEO of MDS UK Maria Piggin…Read more
ISPOR is recognised globally as the leading educational and scientific organisation for health economics and outcomes research (HEOR) and its use in healthcare decisions. The ISPOR Europe 2018 conference took place in Barcelona, Spain from 10-14 November. It featured three thought-provoking plenary sessions and more than 2500 presentations in the form of workshops, issue panels,…Read more
It starts first thing in the morning. An app wakes me and it’s the last thing I use before going to bed at night. Throughout the day, apps tell me my bank balance, if my train is on time and how many steps I have taken. Specific to my Multiple Sclerosis, I self-report side…Read more
Note: This webinar took place on 28 June 2018. You can find a video recording and the presentations used during the webinar below. Webinar introduction Community advisory boards (CAB) are an effective and increasingly widely used structure to create neutral and scientifically framed platforms for all stakeholders involved in medicine research and development to interact on equal…Read more
EUPATI alumni Joan Jordan, Begonya Nafria, Dominique Hamerlijnck and Victoria Fonsou report from the first PARADIGM meeting The word PARADIGM has taken on a whole new meaning in the EUPATI community! The acronym stands for “Patients Active in Research and Dialogues for an Improved Generation of Medicines”. The aim of the PARADIGM project is to…Read more
Note: This webinar took place on 26 September 2017. You can find a video recording and the presentations used during the webinar below. Webinar introduction Increasingly, patient advocates take part in HTA processes across Europe, which is also encouraged by the recommendations of Health Technology Assessment International. This webinar discusses the experience of patient advocates in HTA…Read more
EUPATI has established itself as a solid and reliable source of information for patient experts and lay persons interested to learn more about the medicine research and development, and clinical trials. Thousands of pages of information, a huge library of webinars, mini-courses or starter kits, scientific publications round out the systematic collection of knowledge that…Read more
ISPOR 2017- Report from EUPATI Fellows During the EUPATI course, we learned about the core principles of HTA- the what and the why of pharmacoeconomics. At the ISPOR 20th Annual European Congress, we got the chance to find out more about the who, the when, the how and the where. ISPOR stands for the International…Read more
