EUPATI has successfully raised additional funding. We are delighted to announce that the Patient Expert Training Course will run in 2017/2018, sustaining EUPATI as an independent educational programme.
“Images” includes Basic photo editing (Microsoft Paint, Preview), more Advanced (Gimp, Pixlr, Paint.net and Pixelmator) and Vector image editing (Inkscape and iDraw).
The involvement and feedback of multiple stakeholders is essential in developing meaningful communications initiatives. Inspired by patient insights, this has been EUPATI’s approach and has resulted in impactful tools that have been developed by patients for patients.
Viewing videos (media players), screen recorders like QuickTime and Icecream, Video editors like Lightworks and Windows MovieMaker, Video conversion and compression like Miro, and Video hosting (YouTube, Vimeo, Wistia).
We need to be fast, efficient and professional even though resources may be limited. These new and start-up technology platforms for our work are usually either free of charge, or at least cheaper in an initial period: they are reliable and can satisfy our professional needs.
Learning and self-education are key. Knowing more about your disease and its medical and social background is not only empowering but also allows you to make a meaningful contribution to society.
EUPATI national activities in many of our local chapters – Ireland, UK, Austria, Italy
There are countless possibilities and opportunities for patients to become involved, even if it takes a lot of time and effort!
The stories of patients, families, partners, friends, scientists and health care professionals are quite compelling – and underline that we have a long way to go toward more systematic patient involvement across our health ecosystem. That can only be achieved through appropriate collaboration, commitment, and connection.
Doctors were not very clear in their communication about MS. I didn’t understand them. It was necessary to find easy and understandable Information. I focused on patient groups, looked for sites about patients’ rights. I started to collect all that know-how and started to sort out information, the good vs the bad. I realised how important patient information is. And I noticed that there was not much understandable and useful information for patients. Patient-level information is important for good decision-making.