Open-source alternatives like Office Suites (OpenOffice, LibreOffice, Google Drive), Word Processing like AbiWord, Presentations like Prezi and Flowcharting and Diagramming (Dia or Cacoo).
How have you used the Patient Education Toolbox? Let us know, with photos, videos, adapted materials…
Patients are more and more in the drivers seat and we have news from all over Europe on how patients are working with other stakeholders to redraw the lines of what and how is patient engagement.
EUPATI’s vision can be connected back to rights for patients. The right to be informed, the right to be educated, the right to be involved, the right to be seen as an equal partner.
Project Planning and project management – ProjectLibre, OpenProject and Trello – generally enables project planning with Gantt charts, timelines, task and resource management tools, and report generation.
When patients better understand how good quality clinical trials are performed and they can have a role in their design and conduct, serving to increase recruitment to clinical trials in Switzerland and Europe-wide. EUPATI materials can serve as the basis for training courses aimed at specific patient groups and contribute to the advancement of citizen science in general.
Audio editing and recording software packages generally offer the ability to record and edit (like Audacity, etc), and export audio, and Audio Hosting like SoundCloud.
I am one of this year’s students learning to translate medical-speak to meaningful, accessible and reliable information. This knowledge needs to be made accessible to everyone. Cue the Patient Advocate Toolbox!
National team activities on patient engagement in many European countries.
The processes of patient involvement in industry medicines research and development have evolved, but the evolution of frameworks, mechanisms, metrics and processes happens individually without much alignment and sharing.