On Monday 11th September, I co-chaired a Professional Development Workshop about “Patient Involvement in Medical Projects” at the ERS International Congress. This year’s congress describes itself as “the largest meeting of respiratory professionals in the world, with another outstanding scientific and educational programme designed to address the needs of researchers, clinicians, general practitioners and allied health…Read more
EUPATI held its annual capacity building event for fellows and national platform members and representatives in Berlin on 29 June 2017. The purpose of the meeting was to train and empower participants to share and multiply the knowledge and skills entailed in the EUPATI Expert Training Course and the EUPATI Toolbox to their own patient…Read more
The EUPATI Network of National Platforms held its first general meeting in Berlin on 28 June 2017. Fifteen of the 18 national platforms were represented at the meeting, which was organised and hosted by IPPOSI, the patient organisation umbrella and EUPATI partner in Ireland. In addition to presentations from platform representatives from Germany, Norway, Ireland,…Read more
I participated in the second annual forum of the Scientific Panel for Health organised by the Directorate General for Research and Innovation of the European Union in Brussels on 9 June 2017. Held before a packed room of health research experts from around the EU, the title of the conference was “Health research in a…Read more
Following a long and intense application period, the selection committee for the EUPATI Patient Expert Training Course participants met on 9th May 2017 to decide who of the almost 170 applicants can participate in the course, which will start then in September 2017. Once again, the list of applicants was very impressive, which created an…Read more
Health Technology Assessment is gaining importance in regulatory decisions about the registration and reimbursement of health technologies in a growing number of European states. It is essential to involve patients in this process, and not only because the law requires such involvement in many countries, but also because evidence shows that patients who are informed…Read more
I have done two patient peer reviews for the British Medical Journal. The first, done before the EUPATI training, was deemed a very valuable contribution and they wrote to ask if they could use it as an example of excellence. But the 2nd, I was able to do better (and to understand the full…Read more
We need to be fast, efficient and professional even though resources may be limited. These new and start-up technology platforms for our work are usually either free of charge, or at least cheaper in an initial period: they are reliable and can satisfy our professional needs.
Learning and self-education are key. Knowing more about your disease and its medical and social background is not only empowering but also allows you to make a meaningful contribution to society.
There are countless possibilities and opportunities for patients to become involved, even if it takes a lot of time and effort!