I have done two patient peer reviews for the British Medical Journal. The first, done before the EUPATI training, was deemed a very valuable contribution and they wrote to ask if they could use it as an example of excellence. But the 2nd, I was able to do better (and to understand the full…Read more
The EUPATI project aims to provide education and training to increase the capacity and capability of patient advocates to understand and contribute to medicines research and development and also improve the availability of objective, reliable, patient-friendly information for the public. EPF is looking for a qualified professional who can take over the coordination of content…Read more
We need to be fast, efficient and professional even though resources may be limited. These new and start-up technology platforms for our work are usually either free of charge, or at least cheaper in an initial period: they are reliable and can satisfy our professional needs.
Learning and self-education are key. Knowing more about your disease and its medical and social background is not only empowering but also allows you to make a meaningful contribution to society.
There are countless possibilities and opportunities for patients to become involved, even if it takes a lot of time and effort!