Strong EUPATI Presence at Roadmap Initiative to Good Lay Summary Practices Meeting Having participated in a clinical trial in the past, I found it difficult to get access to the results in an understandable format. This is an issue for many patients who have either taken part in or would like to know the outcomes…Read more
ISPOR is recognised globally as the leading educational and scientific organisation for health economics and outcomes research (HEOR) and its use in healthcare decisions. The ISPOR Europe 2018 conference took place in Barcelona, Spain from 10-14 November. It featured three thought-provoking plenary sessions and more than 2500 presentations in the form of workshops, issue panels,…Read more
It starts first thing in the morning. An app wakes me and it’s the last thing I use before going to bed at night. Throughout the day, apps tell me my bank balance, if my train is on time and how many steps I have taken. Specific to my Multiple Sclerosis, I self-report side…Read more
The starter kits provide you with links to relevant background reading in the toolbox and associated PowerPoint slide decks and media in order to prepare a single or multi-day training on patient involvement in community advisory boards.
ISPOR 2017- Report from EUPATI Fellows During the EUPATI course, we learned about the core principles of HTA- the what and the why of pharmacoeconomics. At the ISPOR 20th Annual European Congress, we got the chance to find out more about the who, the when, the how and the where. ISPOR stands for the International…Read more
I am one of this year’s students learning to translate medical-speak to meaningful, accessible and reliable information. This knowledge needs to be made accessible to everyone. Cue the Patient Advocate Toolbox!