The key assets of EUPATI – the website, the Toolbox, and the Expert Training Course – will be maintained and developed, continuing to educate and empower patients for a more active role as partner in all aspects of medicines research and development.
The EUPATI 2016 Conference, entitled “All Aboard to a Better Health Future”. Attracting more than 250 delegates, attendees heard from experts in the pharmaceutical industry, regulatory and academic fields of the growing influence of patients at all stages of medicine development.
How have you used the Patient Education Toolbox? Let us know, with photos, videos, adapted materials…
National team activities on patient engagement in many European countries.
The processes of patient involvement in industry medicines research and development have evolved, but the evolution of frameworks, mechanisms, metrics and processes happens individually without much alignment and sharing.
EUPATI has successfully raised additional funding. We are delighted to announce that the Patient Expert Training Course will run in 2017/2018, sustaining EUPATI as an independent educational programme.
There were never enough of us activists, but we seemed to be wherever a politician was making a speech or opening a new neighbourhood centre or celebrating an event, etc. We were rarely quiet and respectful. We were constantly protesting, dying in the streets, planning disruptive events. Not only were there no treatments, there was no respect towards the people with the disease. Things have changed dramatically since then.