This blog entry was originally written for the Protect ERNs website. Please sign up here to support the campaign. EUPATI Alumna Maria Piggin, and Sophie Wintrich report: PRESERVATION OF THE UK IN ERNs – WHAT COLLABORATION MEANS FOR PATIENTS AFFECTED BY RARE BLOOD DISORDERS Maria Piggin, Chair of PNH Support, and Sophie Wintrich, CEO of MDS UK Maria Piggin…Read more
Note: This webinar took place on Monday 30th January 2017 – 17:00 to 18:30 CET. You can find the presentations used during the webinar below. Webinar introduction The Council for International Organizations of Medical Sciences (CIOMS) was established jointly by the World Health Organization (WHO) and the United Nations Educational, Scientific and Cultural Organization (UNESCO)in 1949 as…Read more
EUPATI, the European Patients’ Academy, closes its first phase as a project of IMI to now become a programme under the aegis of the European Patients’ Forum (EPF).
Welcome Marco Greco from EPF (European Paitents’ Forum), Pierre Meulien from IMI (Innovative Medicines Initiative) and Roald Nystad (EUPATI Fellow) explain why patient engagement, starting with patient education, is basic, and needs to be instituted throughout the medicines research and development process. Speakers: Marco Greco (EPF), Pierre Meulien (IMI) & Roald Nystad (EUPATI Fellow) Session 1…Read more
Evidence Based Medicine, Evidence-based Medicine (EBM)
This course has been crucial to my advocacy work. It has strengthened my voice as a patient advocate so that I can meaningfully engage with various stakeholders.
Having lived with Multiple Sclerosis for 10 years now and being an active blogger, I realized that patients are not well-informed.
This course has made a hugely important contribution to the public health space and should be a mainstay of publicly funded education.
A professional teaching geared to the amateur with tremendous tutor support. Taking part in the Course has equipped me to be a more knowledgeable advocate for patients.
EUPATI is a ground-breaking, practice-changing health innovation! It upgrades the unexploited value of the patient in medicine!