EUPATI has established itself as a solid and reliable source of information for patient experts and lay persons interested to learn more about the medicine research and development, and clinical trials. Thousands of pages of information, a huge library of webinars, mini-courses or starter kits, scientific publications round out the systematic collection of knowledge that is the Toolbox. And the third cohort of the Patient Expert Course has already advanced deep in the curriculum, and this current group of almost 60 people is also getting ready for the first face-to-face training event in Madrid in February. Speakers and representatives from EUPATI roam conference halls in Europe and spread the skills, knowledge and methodology that we have accumulated over the last 6 years.
It is a natural further development for this powerhouse of information and education to use every possibility to share our skills and knowledge. Several patient organisations have approached us to develop joint webinars on topics pertinent to patient education and patient advocacy. Let me present two of these here, which have already been published. As the editor and speaker of both, I am really proud of these – even though I know that there is still a lot more that needs to be done to make such webinars technically and methodologically more proficient.
In this webinar done together with Lung Cancer Europe, we discuss the significance and theoretical framework of patient advocacy. I argue for the importance of knowledge and scientifically solid information for doing successful advocacy. No policy arguments can be successful without getting your science right.
This other webinar was done together with the European AIDS Treatment Group (EATG), one of the leading organisations in HIV/AIDS patient advocacy in Europe and the world. EATG has been a consortium partner of EUPATI since its beginning, and it continues to be involved as a content development partner, member of the Steering Group etc. EATG representative and chair of the European Community Advisory Board on HIV/AIDS Giulio Maria Corbelli is one of the speakers in this webinar. The other speaker is Matthew May of EPF who is not only the current project coordinator or EUPATI but has also been involved in setting up and running the technological and structural backbone of the entire endeavour, while he has also been member of the Editorial Board together with Giulio.
The webinar explains how the EUPATI Toolbox can be used in a simple, meaningful way to design patient education events and courses, and why it makes sense to use this resource for skills development.
I you are also interested in working with EUPATI on patient education webinars, feel free to approach us with an idea. While all EUPATI materials are open source and free under a Creative Commons license, we certainly appreciate a donation. But most importantly: we always welcome new ideas and suggestions.