Work to date
In 2014, led by EUPATI consortium member Biopeople, University of Copenhagen – Danish supporters of the project, initiated a conversation on patient involvement in medicines research and development between patients, academics and industry representatives in Denmark. In 2015, a second engagement built upon this initial dialogue and the decision was taken to continue the dialogue further and to establish a National Team. In October 2015, EUPATI created the National Team in Denmark.
In March 2016 we launch the EUPATI Danish National Platform. We hope that all national partners with an interest in patient involvement will join the National Platform and together grow the patient involvement conversation in Denmark. We would like to see patient, academic and industry representatives join with government officials, regulatory bodies, health technology assessment agencies, associations of doctors and nurses, medical journalists and many more to better include patients across the medicines research & development process. To ensure patients are equipped to take up their role, the Platform will seek to spread the word about the EUPATI Patient Advocate Toolbox and Online Library, as well as support Danish patients to adapt this material for their own training and learning purposes. Currently we are in the process of translating key lessons from the Toolbox into Danish. The emphasis will be placed on identify opportunities for sharing course material at the national level and growing the number of patient experts nationally.
Meet the Danish EUPATI National Team and Platform in your country
Each National Platform is led by an Executive Committee – or a National Team. The Platform shares information among its membership and discusses important patient involvement issues and opportunities. The Team provides ongoing management and administrative support to the Platform.
- Lotte Klim, Type1 (diabetes), Chairman of the Danish Platform
- Birthe Lemley, Kræft I Underlivet (KIU)
- Kirsten Lerstrøm, diagnosed with lupus, psoriasis, scleroderma, type 2 diabetes and COPD
- Helle Hansen, diagnosed with type 1 diabetes
- Lars Lehrmann, Bløderforeningen
- Susanne Kaae, University of Copenhagen
- Niels Westergaard, Biopeople, University of Copenhagen
- Per Spindler, Biopeople, University of Copenhagen
- Britta Smedgaard Andersen, NEXT-partnership
- Randi Krogsgaard, Biopeople, University of Copenhagen
- Camilla Krogh Lauritzen, Novo Nordisk A/S
- Martin Strandberg-Larsen, H. Lundbeck A/S
- Peter Stendal, Boehringer Ingelheim
- Malene Kelstrup, Takeda
The Team is keen to build a broad-based network around the National Platform in Denmark and they would like to hear from as many local health partners as possible.
You may be interested in joining the National Platform mailing list to learn about future activities or you may be interested in helping with the National Platform strategy and outreach. If so, please contact us via email: email@example.com
Sample files to download:
Under the project grant agreement, there were plans to establish EUPATI National Platforms in 12 countries. Denmark was not one of those countries, but a local group of supporters has helped organically grow a national network. It is for this reason that text on this page only appears in English.